Saturday, August 23, 2014
I’ve had this idea for awhile. I’d like to see a non professional support group for TBI folks formed using the internet.
There appear to be many individual support groups built around certain people, who keep things going with their own content, and updating things through Facebook. For what it is worth, I did start a little hidden google group, for the non professional TBI support group, but there appear to be some obstacles to finding others who might also want to be part of the hidden group. So, I created a public facing page, just dealing with Traumatic Brain Injuries. I am involved with a VCU (Virginia Commonwealth University) study about trying to determine if having a focus group on Facebook might be beneficial for a small group of job seekers. I have a job, and I’m not looking to relocate, but it is interesting. Separately, as part of another Facebook group, I learned that dental issues seem to be relatively common following brain injury. Perhaps the VCU focus group shows that I might want to make the potential target audience larger than just the survivors of TBI.
Sunday, August 24, 2014
OK, I’ve started to assemble the group.
Admittedly, my circle of TBI friends is possibly smaller than that of others. I had a really good time communicating with a fellow through the use of communicator over Facebook, but Facebook limits the amount of text that can be displayed at one time, and as such probably imposes some limitations on expressing complex ideas with many words. I am hopeful that this largely e-mail distribution list way of engaging with other TBI survivors will work out like I am hoping that it will. I know from experience, that big distribution lists can become difficult to manage. With google groups, in theory, it is possible to access the groups through a web based interface, so if traffic were to become too big, accessing it through the web based interface should be fairly easy. I’d like for more disabled people to be accessing technology to engage with others. I understand that there was an article published about the use of Facebook among TBI survivors to build social networks, and engage with others. This article was written by someone out of Mount Sinai School of Medicine. From another conversation I’ve had with a caregiver, she revealed that there seems to be more supportive communities in New York City, maybe something about having a critical mass of people, or just the numbers of people with similar conditions.
Tuesday, August 26, 2014
It supposedly has been said, “Be the change you desire to see in the world.”
Also, “You cannot control the wind, but you can adjust your sails.”
It seems to be a site developed by some folks who are providing support to other smaller, quasi isolated groups.
There was a feral (wild) cat at the university, where my wife works, and the wild cat was brought on Campus by students who graduated, and stopped feeding it. Well, my wife and some of her co-workers had taken after the cat and were also feeding it. The cat I suppose ate pretty good. Well, for the last few months, the cat’s health has been declining. Some vets were consulted, and it was hypothesized that the cat may have had a tumor behind it’s left eye. The left side eye was shut, and seeping. The feral cat was clearly in declining health. I did not have much interaction with said cat, but I was able to pick it up, as it tried to get up and walk away, but only managed to roll over. Well, we had a borrowed cat trap from another concerned feral cat trapper neighbor, so we put Blackie into the cat trap, and took it to a evening veterinary services place to have the animal not suffer. It was a sad situation, but our other cats are getting care, and I suppose the feral cat won’t be suffering. Wild cats generally don’t have as long of a life as the domesticated house cats. Particularly, the indoor house cats. Having the ability to have food is important. Wild animals have a tendancy to be eaten by other wild animals, or at least becoming food for vultures. Having this veterinary services place that was open in the evenings was interesting. There were some girls with puppies when we were talking about the cat, deciding what to do. It was providing a service to people who had other responsibilities during the day.
Death is something which we all must deal with in others and indeed experience ourselves. Some religions have different ideas of what happens next. Some religions teach that the next experience is better, or worse.
Bumper Sticker : War is not Pro-life.
The French Onion Soup at Disney’s Saratoga Springs is very good. We like it anyway. Yesterday, after work, we went to stay one night. We stayed at the Midtown Hilton Garden Inn, kind of removed from the other hotels nearby. It was a good place to stay for a night. We went to Magic Kingdom, Disney’s Castle resort with Tomorrow land, Main Street USA, Adventure land, Frontier land, and whatever else. Disney was open until 6 AM today, I didn’t think we’d make it very long. We rode the train around, and walked around the park for awhile, but we decided to not stay until the 11 pm parade. There were many people who were at the park when we left. Some people were dragging very young kids around, and it was kind of confusing. Oh well. I suppose that children in strollers can sleep.
We went to go see the performance of The Amorous Ambassador, a play by Michael Parker as performed by Carrollwood Players. It was a funny play. Even if it might be somewhat unrealistic. It most likely is a work of fiction, not based in fact. Live theatre is usually a good time. In this fictional account, an American Ambassador to Britain hires a new butler to assist at the house. The household consists of a daughter, the wife, and the Ambassador. The intro is that the Ambassador will go spend the weekend in Scottland golfing, the daughter will go spend the weekend with her girlfriend, and the wife will go away at a spa. Meanwhile, the daughter has a boyfriend over, and the Ambassador has something going on with a next door neighbor. The embassy has a bomb threat, so a marine head of security relocates to the house along with the Ambassador’s secretary. The secretary gets super-duper wonderglue on the hands of the butler, who gets his hand glued to the dress of the secretary, and some funniness happened, Similarly, the daughter’s boyfriend dresses up as a girl to play along, and attracts the attention of the Ambassador, and more funniness happens. The wife comes back and ends up with the marine, while the Bulter pairs with the secretary. The actors and actresses all did a very nice job, I think. Carrollwood Players seems to be an interesting part of the economy. I’m not entirely sure how little groups of players survive. I would imagine that for many this is a second job. People probably have different types of employment. Acting as a career choice probably has different needs for sleep and wakefulness.